After receiving what felt like great news yesterday (Olivia is holding her own- is more resilient than what they expected despite continuing heart failure) Jeni and Jason were referred to the Midwest Fetal Care Center in Minnesota.
Jeni was expedited into an appointment today and she and Jason sat down with their specialists to learn Olivia is very, very sick and her heart condition is extremely rare, they said one in a million. She’s too small for interventions to help at this point and even so, the surgeon did not think she would likely be a good candidate for a transplant with how sick she is. Further complications were found that are not just bad for baby but potentially for Jeni. They don’t think Olivia will make it to birth, they think it could be days or weeks. They seemed fairly concerned for Jeni’s health as well— fearing that she could develop preeclampsia or something called mirror syndrome where her body could mirror Olivia’s symptoms of heart failure. While Jeni and Jason were grateful to have some more answers- we are continuing down a very painful road. I don’t quite know how to pray from here- pleading for my sister’s health has joined the list. For her husband. For their kids who are in a home that is under impossible pressure.